This is a book about monsters. Not the cute, laughably incompetent ones you see in animated movies, but the ones you meet in your own life: ugly thoughts, unexpected losses, inexcusable evils.At age twenty, Kate Wolfe-Jenson had already discovered her monster-mind. She was an expert at negative thinking and expecting disaster. Then she was diagnosed with Multiple Sclerosis. Together, the monsters whipped her into a wild dance, MS tapping out fear and sadness and her monster-mind twirling it into depression, rage and grief. It seemed like the monsters would win. A decade after being diagnosed, she discovered that what she knew about the creative process could help her deal with the frustrations of living with chronic illness (and life in general). Through that understanding, she entered into a dance with illness and healing, rather than running from them.Through memoir, essay and fanciful stories, this book explores the landscape of chronic illness, describes its contours and invites you onto the dance floor.
Praise from Readers
“amazing, a beautiful blending of honesty and creativity.” Rev. Bebe Baldwin
“It rang so true for me and my journey after the cancer diagnosis.” Pat Nyman
“only those with a chronic sickness… truly know what it feels like day in and day out. I just gave up because I could never find the words. Your way works. Ed Krawiecki 15-year MS veteran
Finding the grace beyond monster voices
My friend Al, who has multiple sclerosis, went to his physician with some troublesome new symptoms. “Am I feeling this way because I’m aging or is it the MS?” he asked. “Yes,” replied the doctor. Lately, my disability due to MS has increased significantly. I need help...
Moments of Connection act as Spiritual Elastic
Believe me, I get it: you don’t want to connect with anybody when you’re not feeling well. You are spending so much energy dealing with your body it’s hard to have any left even to make a phone call. Besides, what if you hear “how are you?” An honest answer seems out...
How Mindfulness-based Interventions help us Cope with Chronic Illness
These days, it’s easy to find evidence that mindfulness meditation is good for what ails us. There are studies and meta- studies lining up to tell us that folks with chronic illness who participate in mindfulness-based stress reduction programs (MBSR): deal...
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