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Once again, I am in a season of change with my body. Over the last month, my left hand has become significantly more disabled. I can’t always click the mouse or swipe the iPad. Meanwhile, I feel more breathless and tired on the days when I need to talk (and I talk to write.)
After all these years, the grief and fear seem distant, as though viewed through the wrong end of binoculars. They seem like something I should feel, but don’t. Progress? Depression? Who can say?
It’s cold outside today – only 63°. The wind is blowing the chimes so they alternately ring and clang. I am inside, safe and warm. My breath and assistive software are working together well enough to write this blog post. So maybe it’s progress… I am better at being here, in the present moment, not worrying about what will happen next.
I discussed wheelchair specification with the durable equipment consultant last week. We don’t need to worry about going cross-country anymore. My daughter is grown; no need to chase her. She was eight years old when I got the first wheelchair. Instead, I asked for the ability to recline and put my feet up. Let’s think about napping, not running. The sadness is a wistful end-of-the-garden feeling, not a cutting pain. I am older.
“Because dried herbs are generally more potent and concentrated than fresh herbs,” Martha Stewart advises us, “you’ll need less — typically three times the amount of fresh herbs as dry. For example, if a recipe calls for 1 tablespoon of fresh oregano, you need only 1 teaspoon of dried, since 3 teaspoons equal 1 tablespoon.”
Here I am, potent and concentrated.
On one level, there is pragmatic problem-solving. Experiment with mouth sticks. Order a new wheelchair.
On another level, I make room for the sadness. It’s an old friend by now.
And then, because I’m not dead yet and intend to live until I die, there is planning. How, exactly, do I want to spend my time? What are my priorities? I would like to do some more writing. I would like to make some more art. I would like to live in beauty.
So there we are, rules of engagement:
- Bring tender curiosity: what is changing in my body?
- Identify equipment that may make life easier.
- Stay in this moment through sensory awareness. (What do I see, hear, taste, feel, smell?)
- Make space for emotions without getting caught in a story.
- Decide what’s important.
- Find a metaphor with which to play…
Now I will go forth, amused and strengthened, because I know that – even in this frosted over garden – there is flavor and purpose and joy.
Dear Kate, You always give me so much to think about with your eloquent words. Thank you
Thank you for your kind words. (I’ll take kindness over eloquence any day!)
Kate,
I loved this metaphor of dried herbs being more potent.
Thanks, Kay… Metaphors help steer me through life –