This is a book about monsters. Not the cute, laughably incompetent ones you see in animated movies, but the ones you meet in your own life: ugly thoughts, unexpected losses, inexcusable evils.At age twenty, Kate Wolfe-Jenson had already discovered her monster-mind. She was an expert at negative thinking and expecting disaster. Then she was diagnosed with Multiple Sclerosis. Together, the monsters whipped her into a wild dance, MS tapping out fear and sadness and her monster-mind twirling it into depression, rage and grief. It seemed like the monsters would win. A decade after being diagnosed, she discovered that what she knew about the creative process could help her deal with the frustrations of living with chronic illness (and life in general). Through that understanding, she entered into a dance with illness and healing, rather than running from them.Through memoir, essay and fanciful stories, this book explores the landscape of chronic illness, describes its contours and invites you onto the dance floor.
Praise from Readers
“amazing, a beautiful blending of honesty and creativity.” Rev. Bebe Baldwin
“It rang so true for me and my journey after the cancer diagnosis.” Pat Nyman
“only those with a chronic sickness… truly know what it feels like day in and day out. I just gave up because I could never find the words. Your way works. Ed Krawiecki 15-year MS veteran
four disciplines that help when you are ill
A friend was behind in her book club reading. “I have to read four chapters,” she sighed. Editing herself, she amended “I choose to read four chapters.” I suggested “you get to read four chapters.” She was re-ordering her thinking as we listened. Living with chronic...
Lessons from the latest hospitalization (with journaling prompts)
before they flitter away, I wanted to capture some of the lessons I think the latest hospitalization (four nights last week) brought with it. I don’t mean the practical, body care tasks, but rather the soft skills I want to cultivate as part of my well-being. 1. Ask...
The strength of surrender
We human beings like to pretend we are in control. We imagine we live in a fair and predictable universe. Part of what makes illness difficult is that we realize the opposite is true. No matter how carefully we assemble the building blocks of health, disease happens,...
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