This is a book about monsters. Not the cute, laughably incompetent ones you see in animated movies, but the ones you meet in your own life: ugly thoughts, unexpected losses, inexcusable evils.At age twenty, Kate Wolfe-Jenson had already discovered her monster-mind. She was an expert at negative thinking and expecting disaster. Then she was diagnosed with Multiple Sclerosis. Together, the monsters whipped her into a wild dance, MS tapping out fear and sadness and her monster-mind twirling it into depression, rage and grief. It seemed like the monsters would win. A decade after being diagnosed, she discovered that what she knew about the creative process could help her deal with the frustrations of living with chronic illness (and life in general). Through that understanding, she entered into a dance with illness and healing, rather than running from them.Through memoir, essay and fanciful stories, this book explores the landscape of chronic illness, describes its contours and invites you onto the dance floor.
Praise from Readers
“amazing, a beautiful blending of honesty and creativity.” Rev. Bebe Baldwin
“It rang so true for me and my journey after the cancer diagnosis.” Pat Nyman
“only those with a chronic sickness… truly know what it feels like day in and day out. I just gave up because I could never find the words. Your way works. Ed Krawiecki 15-year MS veteran
Finding my way from symptom to self-compassion
I’ve been noticing recently that I have a scratchy, wavering old lady voice. It comes from not having enough air to project the sound. The nerve connections to my diaphragm and intercostal muscles are mostly gone, so I can’t get good breath support. (One of the things...
How people who are ill can connect in times of social distancing
In six more days, I will be fully vaccinated – two Pfizer vaccine shots +2 weeks of quarantine. While I’m excited about getting to the dentist and eye doctor, I am not going back to any in-person gatherings. We are still in the midst of pandemic and I, as “a person...
Joy amidst illness and disability
When you are ill, especially with a serious diagnosis, it’s easy to have the sensations and the emotional fallout of it take over your life. You become the illness or the pain. Dealing with it hijacks all your energy. When it feels like that, you may have no other...
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